The Network is a coalition of 60+ LGBTQ-specific organizations and programs whose mission is to increase the capacity to serve LGBTQ communities through funding and policy advocacy, technical assistance, capacity-building and coalition work.
The New York State LGBTQ+ Health and Human Services Network Needs Assessment is among the most comprehensive LGBTQ health surveys in the U.S. It aims to highlight the needs and service barriers faced by this underserved community, offering detailed insights into disparities influenced by race, ethnicity, age, gender, disabilities, religion, region, education, income, and more. Conducted online from September to November 2021 during the pandemic peak, the survey involved over 2,300 respondents and captures the profound impact of COVID-19 on LGBTQ individuals, exacerbating pre-existing inequalities.
This digital overview of the report highlights key findings, including intersectional disparities in care/access and the critical need for mental health support.
Hover over each visualization in the sections below to explore the survey data.
A generational shift is underway. The 2021 Survey shows a community that has shifted substantially in terms of gender expression and identity since the last survey in 2015. The community is growing more diverse in gender identity and sexual orientation, such that binary gender identities and lesbian and gay orientations are trending toward minority status in the larger LGBTQ+ community. The shift is most pronounced in the breakdown of gender and orientation by three major age groups (13-34, 35-49, 50+).
Hover over the points on the triangles below to see the % breakdown.
Disparities in needs, access, and outcomes in the LGBTQ+ community mirror the patterns of racial and ethnic health disparities at-large in American society. In the majority of needs and issues examined in the survey, non-White respondents report higher levels of needs and lower levels of receiving services than their White counterparts.
In some areas the disparities are glaring — especially in terms of food security, obtaining public assistance, and receiving services sought in most service areas including chronic conditions, major health events, mental health, environmental health, and reproductive health. In 20 out of 23 different services non-White respondents reported a lower level of receiving services than White respondents.
For more information, consult section 2B of the full report.
The bar chart below shows the percentage of respondents who sought support for
but were unable to access services:
Hover over the chart below to see the % breakdown.
Immigration and asylum experiences affect every aspect of quality of life. HIV prevalence among respondents born outside the U.S. is 4 to 5 times the survey mean (15%-18%) compared to 3-5% for those born in the US. Those born outside the US were also twice as likely to report abuse in relationships or the family, twice as likely to have reported environmental health concerns, and more likely to have experienced major health events (e.g., medical emergencies, surgeries, or major acute illness) but two-to-three times more likely to have not received services for major health events.
Approximately 10% of respondents had tested positive for COVID-19 at the time of the survey. As in the population as a whole, the effects of the pandemic were more strongly felt by non-White respondents, with respondents who identified as Black, another race or ethnicity, or Latinx/Hispanic reporting the highest rates of Covid-19 infection.
Mental health is both the largest support need and greatest opportunity area for improving the well-being and quality of life of the LGBTQ community in New York State. 77.4% of respondents reported mental health needs, yet 23.6% did not receive services. This mental health crisis is highly associated with experiences of discrimination, as well as high levels of medical mistrust, lower self-reported health, low self-reported quality of life, and a lack of social inclusion and support.
Respondents reported feeling (at least ‘half the time’ or ‘most of the time’ in the prior 12 months) anxious/nervous (51%), down/depressed/hopeless (36%), little interest in doing things (33%), and scared for their life (12%).
27% of respondents reported feeling isolated, 22% reported 'lacking companionship', and 21% reported feeling left out 'often or mostly.' There is a strong overlap of mental health and substance use service needs. 89% reported some substance use (including alcohol and tobacco), with half reporting using only one or two substances. 18% reported using three substances, and another 21% reported using four or more substances.
While there is a significant demand for services within the LGBTQ community, a large proportion (62.6%) of respondents did not seek out the care or services they need. Among these, individuals under 35 represented over half of those who refrained from seeking support. Among those who did seek non-behavioral services but were unsuccessful, 29% said they could not find the required services locally in their area. In terms of mental health services, 47% of respondents who looked for but did not obtain services/care cited the absence of such services locally as the primary obstacle. Telehealth services can provide a cheaper and simpler alternative to improve accessibility.
Fund organizations and programs providing mental health services that are:
'I could not find services in my area' is one of the most common reasons why people do not access health services. Telehealth is a cheaper and simpler option to improve accessibility. Incentivize service providers to increase service availability by compensating behavioral and non-behavioral telehealth services at competitive rates for organizations.
Fund and support the training, technical assistance, and support to public and private service providers to increase the state's capacity to serve its LGBTQ constituents. We recognize the importance and work to educate the public about the importance of extended LGBTQ cultural competency training and improved LGBT-affirming policies, regulations, and service standards.
Invest in developing targeted programming to reach historically marginalized groups within our communities: BIPOC communities, younger and aging clients, people with disabilities, immigrants, and TGNC clients. Support pathways to bring minority candidates into the profession, or supporting certified and trained peer positions that address issues of discrimination, fear, and mistrust in the community.
The Network is a coalition founded in 1994 and administered by The Center. We aspire to increase the safety, freedom, quality of life, and wellbeing of every LGBTQ+ person in New York State.